In Person Bighearted Warriors Unite - Seattle, WA

07/26/2025 07:45 AM - 03:30 PM PT

Description

 

  • What: Bighearted Warriors Unite Featuring The University of Washington & Virginia Mason Franciscan Health
  • Where: Bell Harbor International Conference Center - 2211 Alaskan Way, Pier 66, Seattle, WA 98121
  • When: Saturday, July 26, 2025 
  • Time: 7:45 AM - 3:30 PM 
  • Tentative Agenda 
    7:45 AM Registration and Breakfast
    8:30 AM Intro- Welcome
    8:45 AM What is HCM and HCM Spectrum Disorders: Amyloidosis, Fabry Disease, Sarcoidosis, and why knowing matters
    9:10 AM Genetics: From Testing to Therapy
    9:35 AM Shared Decision Making: How to communicate with your healthcare provider
    10:00 AM Is a Clinical Trial right for me?
    10:25 AM Break
    10:40 AM Old School medical management, what still works?
    11:05 AM The role of myosin inhibitors
    11:25 AM SRT - remains a viable option for many
    11:50 PM Lunch
    12:50 PM HCMA Services & Updates
    1:15 PM Pediatric and Adolescent HCM
    1:40 PM Exercise for HCM Patients
    2:05 PM Break
    2:20 PM Transplant pathway: who, when, and outcomes
    2:45 PM Managing Atrial Fibrillation, SCA and Device Management in HCM
    3:05 PM Panel & Questions
    3:25 PM Closing

**NOTE: Free or discounted scholarship admissions are available for those who qualify financially.  Call our office for details at (973) 983-7429 or email support@4hcm.org 

All proceeds to benefit the HCMA's Lori Fund. The Lori Fund provides micro travel grants to HCM patients traveling to an HCMA Recognized Center of Excellence for care or for HCM patients traveling to a facility for heart transplant care.